Journal of Literary & Cultural Disability Studies

Geel’s Family Care Tradition

Care, Communities, and the Social Inclusion of Persons with Disabilities

Journal of Literary & Cultural Disability Studies (2017), 11, (3), 285–302.

Abstract

The human right to social inclusion is not well secured by the state alone. Rather, communities must be welcoming and flexible, adjusting to the contributions and needs of persons with disabilities. Attending to the practice of placing boarders with mental illness in family homes in Geel, Belgium—which integrates persons with disabilities not only into the family, but also into the town—highlights the limits of a legalistic approach to human rights, as well as the benefits of a cultural studies approach to rights. By examining the cultural practice of Geel, this article shows that the work of care can create inclusive communities. Though care has its own weaknesses—it can create power asymmetries and facilitate paternalism—this risk is moderated by the practice of reciprocal care, where care is given and received by both boarders and families.

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Bogdan, Robert, and Steven J. Taylor. “Relationships with Severely Disabled People: The Social Construction of Humanness.” Social Problems 36.2 (Apr. 1989), 135–48. Print. Faction Social Problems 36.2 135 48 Google Scholar

 Google Scholar

Couture, Shannon, and David Penn. “Interpersonal Contact and the Stigma of Mental Illness: A Review of the Literature.” Journal of Mental Health 12.3 (June 2003): 291–305. Print. Interpersonal Contact and the Stigma of Mental Illness: A Review of the Literature Journal of Mental Health 12.3 291 305 Google Scholar

Cruft, Rowan, S. Matthew Liao, and Massimo Renzo, eds. Philosophical Foundations of Human Rights. Oxford: Oxford University Press, 2015. Print. Philosophical Foundations of Human Rights Google Scholar

Davis, Lennard J. Bending Over Backward: Disability, Dismodernism, and Other Difficult Positions. New York: New York University Press, 2002. Print. Bending Over Backward: Disability, Dismodernism, and Other Difficult Positions Google Scholar

Garland-Thomson, Rosemarie. Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature. New York: Columbia University Press, 1997. Print. Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature Google Scholar

Goldin, Grace. “A Painting in Gheel.” Journal of the History of Medicine and Allied Sciences 26 (1971): 400–12. Print. A Painting in Gheel Journal of the History of Medicine and Allied Sciences 26 400 12 Google Scholar

Goldstein, Jackie L., and Marc M. L. Godemont. “The Legend and Lessons of Geel, Belgium: A 1500-Year-Old Legend, a 21st-Century Model.” 39.5 (Oct. 2001): 441–58. Print. The Legend and Lessons of Geel, Belgium: A 1500-Year-Old Legend, a 21st-Century Model 39.5 441 58 Google Scholar

Harding, Jenny. “Talk about Care: Emotions, Culture, and Oral History.” Oral History 38.2 (2010): 33–42. Print. Talk about Care: Emotions, Culture, and Oral History Oral History 38.2 33 42 Google Scholar

Held, Virginia. The Ethics of Care: Personal, Political, and Global. Oxford: Oxford University Press, 2006. Print. The Ethics of Care: Personal, Political, and Global Google Scholar

Jay, Mike. “The Geel Question.” Aeon. Web. 5 Feb. 2016. The Geel Question Aeon Google Scholar

Johnson, Kelley, Jan Walmsley, and Marie Wolfe. People with Intellectual Disabilities. Bristol: Policy Press, 2010. Print. People with Intellectual Disabilities Google Scholar

Mental Health: New Understanding, New Hope. France: World Health Organization, 2001. Web. 1 Feb. 2016. Google Scholar

Milner, Paul, and Berni Kelly. “Community Participation and Inclusion: People with Disabilities Defining Their Place.” Disability and Society 24.1 (2009): 47–62. Print. Community Participation and Inclusion: People with Disabilities Defining Their Place Disability and Society 24.1 47 62 Google Scholar

Moore, Alexandra Schultheis, and Elizabeth Swanson Goldberg. “Human Rights Cultures and Traditions: Beyond the Post-/Colonial and West.” Teaching Human Rights in Literary and Cultural Studies. Ed. Alexandra Schultheis Moore and Elizabeth Swanson Goldberg. New York: The Modern Language Association of America, 2015. Print. Human Rights Cultures and Traditions: Beyond the Post-/Colonial and West Teaching Human Rights in Literary and Cultural Studies Google Scholar

Noddings, Nel. Caring: A Feminine Approach to Ethics & Moral Education. Berkeley: University of California Press, 1984. Print. Caring: A Feminine Approach to Ethics & Moral Education Google Scholar

Norden, Martin F. The Cinema of Isolation: A History of Physical Disability in the Movies. New Brunswick, NJ: Rutgers UP, 1994. Print. The Cinema of Isolation: A History of Physical Disability in the Movies Google Scholar

Roosens, Eugeen. Mental Patients in Town Life: Geel—Europe’s First Therapeutic Community. Beverly Hills: Sage, 1979. Print. Mental Patients in Town Life: Geel—Europe’s First Therapeutic Community Google Scholar

Roosens, Eugeen, and Lieve Van de Walle. Geel Revisited: After Centuries of Mental Rehabilitation. Antwerp, Garant: 2007. Print. Geel Revisited: After Centuries of Mental Rehabilitation Google Scholar

Parry-Jones, William Ll. “The Model of the Geel Lunatic Colony and Its Influence on the Nineteenth-Century Asylum System in Britain.” Madhouses, Mad-Doctors, and Madmen. Ed. Andrew Scull. Philadelphia: University of Pennsylvania Press, 1981. Print. The Model of the Geel Lunatic Colony and Its Influence on the Nineteenth-Century Asylum System in Britain Madhouses, Mad-Doctors, and Madmen Google Scholar

Sabatello, Maya, and Marianne Schulze, ed. Human Rights and Disability Advocacy. Philadelphia: University of Pennsylvania Press, 2014. Print. Human Rights and Disability Advocacy Google Scholar

 Google Scholar

Tocqueville, Alexis de. Democracy in America. Ed. J. P. Mayer. Trans. George Lawrence. New York: Harper Perennial, 1969. Print. Democracy in America Google Scholar

Tronto, Joan. Moral Boundaries: A Political Argument for an Ethic of Care. New York: Routledge, 1993. Moral Boundaries: A Political Argument for an Ethic of Care Google Scholar

Waldron, Jeremy. Liberal Rights: Collected Papers 1981–1991. Cambridge: Cambridge University Press, 1993. Print. Liberal Rights: Collected Papers 1981–1991 Google Scholar

White, Glen, Jamie Lloyd Simpson, Chiaki Gonda, Craig Ravesloot, and Zach Coble. “Moving from Independence to Interdependence: A Conceptual Model for Better Understanding Community Participation of Centers for Independent Living Consumers.” Journal of Disability Policy Studies 20.4 (2010): 233–40. Print. Moving from Independence to Interdependence: A Conceptual Model for Better Understanding Community Participation of Centers for Independent Living Consumers Journal of Disability Policy Studies 20.4 233 40 Google Scholar

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McCrary, Lorraine Krall