Journal of Literary & Cultural Disability Studies

Disability and Native North American Boarding School Narratives

Madonna Swan and Sioux Sanitorium

Journal of Literary & Cultural Disability Studies (2013), 7, (2), 195–212.

Abstract

The article analyzes the only known book-length narrative of a Native American tuberculosis survivor, Madonna Swan. Swan's disability memoir can be read as the lived embodiment of the decolonization movement within the Lakota Nation and across the Americas. This reading provides new insight into the overcoming narrative, as currently conceived in disability studies, insofar as Swan's autobiography resists forced acculturation and reclaims Lakota identities within this genre.

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Lomawaima, K. Tsianina. They Called It Prairie Light: The Story of Chilocco Indian School. Lincoln: U of Nebraska P, 1994. Print. They Called It Prairie Light: The Story of Chilocco Indian School Google Scholar

Medicine, Beatrice. Drinking and Sobriety among the Lakota Sioux. New York: AltaMira P, 2007. Print. Google Scholar

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 Google Scholar

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St. Pierre, Mark. Madonna Swan: A Lakota Woman's Story. Norman: U of Oklahoma P, 1991. Print. Madonna Swan: A Lakota Woman's Story Google Scholar

Standing Bear, Luther. My People the Sioux. Lincoln: U of Nebraska P, 1975. Print. My People the Sioux Google Scholar

Tatonetti, Lisa. "‘Dancing Back Strong the Nation’: Two-Spirit Images in the Work of Maurice Kenny." Maurice Kenny: Celebrations of a Mohawk Writer. Ed. Penelope M. Kelsey. Albany: State U of New York P, 2011. 119-32. Print. Maurice Kenny: Celebrations of a Mohawk Writer 119 32 Google Scholar

Tesh, Sylvia. Hidden Arguments: Political Ideology and Disease Prevention Policy. New Brunswick, NJ: Rutgers UP, 1988. Print. Hidden Arguments: Political Ideology and Disease Prevention Policy Google Scholar

Voss, Richard W., Victor Douville, Alex Little Soldier, and Albert White Hat, Sr. "Wo'Lakol Kiciyapi." Journal of Multicultural Social Work 7:1-2 (1999): 73-93. Print. Wo'Lakol Kiciyapi Journal of Multicultural Social Work 7 73 93 Google Scholar

Wald, Priscilla. Contagious: Cultures, Carriers, and the Outbreak Narrative. Durham: Duke UP, 2007. Print. Contagious: Cultures, Carriers, and the Outbreak Narrative Google Scholar

Walker, James R. "Tuberculosis among the Oglala Sioux Indians." The American Journal of the Medical Sciences 132.4 (1906): 600-605. Print. Tuberculosis among the Oglala Sioux Indians The American Journal of the Medical Sciences 132 600 605 Google Scholar

Williamson, Thomas S. "The Diseases of the Dakota Indians." Northwestern Medical and Surgical Journal 4 (1874): 418-19. Print. The Diseases of the Dakota Indians Northwestern Medical and Surgical Journal 4 418 19 Google Scholar

Zitkala-Ša. American Indian Stories. Lincoln: U of Nebraska P, 1979. Print. American Indian Stories Google Scholar

Abel, Emily K. Tuberculosis and the Politics of Exclusion: A History of Public Health and Migration to Los Angeles. Piscataway, New Jersey: Rutgers U P, 2007. Print. Tuberculosis and the Politics of Exclusion: A History of Public Health and Migration to Los Angeles Google Scholar

Abel, Emily K., and Nancy Reifel. "Interactions between Public Health Nurses and Clients on American Indian Reservations in the 1930s." Women and Health in America: Historical Readings. Ed. Judith Walzer Leavitt. Madison: U of Wisconsin P, 1999. 489-505. Print. Women and Health in America: Historical Readings 489 505 Google Scholar

Aboriginal Healing Foundation. Summary Points of the AHF Final Report. Web. 19 March 2013. Google Scholar

Adams, David. Education for Extinction: American Indians and the Boarding School Experience, 1875-1928. Lawrence: UP of Kansas, 1995. Print. Education for Extinction: American Indians and the Boarding School Experience, 1875-1928 Google Scholar

Ah-nen-la-de-ni (Daniel La France). An Indian Boy's Story. Originally published in The Independent 55: 1780-87. Web. 19 March 2013. Google Scholar

Alberta, Clint. Lost Songs. National Film Board of Canada. 1999. DVD. Lost Songs Google Scholar

Allen, Paula Gunn. The Sacred Hoop: Recovering the Feminine in American Indian Traditions. Boston: Beacon P, 1992. Print. The Sacred Hoop: Recovering the Feminine in American Indian Traditions Google Scholar

Archuleta, Margaret L., Brenda J. Child, and K. Tsianina Lomawaima. Away from Home: American Indian Boarding School Experiences, 1879-2000. Phoenix: Heard Museum, 2000. Print. Away from Home: American Indian Boarding School Experiences, 1879-2000 Google Scholar

Bucko, Raymond, and Stella Iron Cloud. "Lakota Health and Healing." Southern Medical Journal 101.6 (2008): 596-98. Print. Lakota Health and Healing Southern Medical Journal 101 596 98 Google Scholar

Child, Brenda J. Boarding School Seasons: American Indian Families, 1900-1940. Lincoln: U of Nebraska P, 1998. Print. Boarding School Seasons: American Indian Families, 1900-1940 Google Scholar

Connolly, Cynthia A. Saving Sickly Children: The Tuberculosis Preventorium in American Life, 1909-1970. New Brunswick, NJ: Rutgers UP, 2008. Print. Saving Sickly Children: The Tuberculosis Preventorium in American Life, 1909-1970 Google Scholar

Couser, G. Thomas. Vulnerable Subjects: Ethics and Life Writing. Ithaca: Cornell UP, 2004. Print. Vulnerable Subjects: Ethics and Life Writing Google Scholar

Davis, Lennard J, ed. The Disability Studies Reader. New York: Routledge, 2013. Print. The Disability Studies Reader Google Scholar

Deloria, Ella. Speaking of Indians. Lincoln: U of Nebraska P, 1998. Print. Speaking of Indians Google Scholar

Driskill, Qwo-Li. "Stolen From Our Bodies: First Nations Two-Spirits/Queers and the Journey to a Sovereign Erotic." Studies in American Indian Literatures 16.2 (2004): 50-64. Print. Stolen From Our Bodies: First Nations Two-Spirits/Queers and the Journey to a Sovereign Erotic Studies in American Indian Literatures 16 50 64 Google Scholar

Driskill, Qwo-Li. "Dancing Back Strong Our Nations: Performance as Continuance in Maurice Kenny's Poetry." Maurice Kenny: Celebrations of a Mohawk Writer. Ed. Penelope M. Kelsey. Albany: State U of New York P, 2011. 25-36. Print. Maurice Kenny: Celebrations of a Mohawk Writer 25 36 Google Scholar

Gilley, Brian Joseph. "Making Traditional Spaces: Cultural Compromise at Two-Spirit Gatherings in Oklahoma." American Indian Culture and Research Journal 28.2 (2004): 81-96. Print. Making Traditional Spaces: Cultural Compromise at Two-Spirit Gatherings in Oklahoma American Indian Culture and Research Journal 28 81 96 Google Scholar

Gilley, Brian Joseph. Becoming Two-Spirit: Gay Identity and Social Acceptance in Indian Country. Self-published. 2006. Print. Google Scholar

Gilman, Sander L. Disease and Representation: Images of Illness from Madness to AIDS. Ithaca: Cornell UP, 1991. Print. Disease and Representation: Images of Illness from Madness to AIDS Google Scholar

Girard, René. The Scapegoat. Baltimore: Johns Hopkins UP, 1986. Print. The Scapegoat Google Scholar

Goffman, Erving. Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice-Hall, 1963. Print. Stigma: Notes on the Management of Spoiled Identity Google Scholar

Hunter, John E. "Tuberculosis in the Negro: Causes and Treatment." Major Problems in the History of American Medicine. Ed. John Harley Warner and Janet A. Tighe. New York: Houghton Mifflin, 2001. 245-48. Print. Major Problems in the History of American Medicine 245 48 Google Scholar

Jacobs, Sue-ellen, Wesley Thomas, and Sabine Lang. Two-spirit People: Native American Gender Identity, Sexuality, and Spirituality. Champaign: U of Illinois P, 2007. Print. Two-spirit People: Native American Gender Identity, Sexuality, and Spirituality Google Scholar

Justice, Daniel Heath. "‘Go Away Water!’: Kinship Criticism and the Decolonization Imperative." Reasoning Together: The Native Critics Collective. Ed. Craig S. Womack, Daniel Heath Justice, and Christopher B. Teuton. Norman: U of Oklahoma P, 2008. 147-68. Print. Reasoning Together: The Native Critics Collective 147 68 Google Scholar

Kenny, Maurice. Backward to Forward. Fredonia, New York: White Pine Press, 1997. Print. Backward to Forward Google Scholar

LaDuke, Winona. Last Standing Woman. Stillwater: Voyageur Press, 1997. Print. Last Standing Woman Google Scholar

LaFlesche, Francis. The Middle Five. Lincoln: U of Nebraska P, 1963. Print. The Middle Five Google Scholar

Lang, Sabine. Men as Women, Women as Men: Changing Gender in Native American Cultures. Trans. John L. Vantine. Austin: U of Texas P, 1998. Print. Men as Women, Women as Men: Changing Gender in Native American Cultures Google Scholar

Lomawaima, K. Tsianina. They Called It Prairie Light: The Story of Chilocco Indian School. Lincoln: U of Nebraska P, 1994. Print. They Called It Prairie Light: The Story of Chilocco Indian School Google Scholar

Medicine, Beatrice. Drinking and Sobriety among the Lakota Sioux. New York: AltaMira P, 2007. Print. Google Scholar

Mitchell, David T., and Sharon L. Snyder. Narrative Prosthesis: Disability and the Dependencies of Discourse. Ann Arbor: U of Michigan P, 2001. Print. Narrative Prosthesis: Disability and the Dependencies of Discourse Google Scholar

Mollow, Anna. "‘When Black Women Start Going on Prozac’: Race, Gender, and Mental Illness in Meri Nana-Ama Danquah's Willow Weep for Me." MELUS 31.3 (2006): 67-99. Print. ‘When Black Women Start Going on Prozac’: Race, Gender, and Mental Illness in Meri Nana-Ama Danquah's Willow Weep for Me MELUS 31 67 99 Google Scholar

Northrup, Jim. Rez Salute: The Real Healer Dealer. Golden, Colorado: Fulcrum, 2012. Print. Rez Salute: The Real Healer Dealer Google Scholar

 Google Scholar

Reifel, Nancy. "American Indian Views of Public-Health Nursing, 1930-1950." Medicine Ways: Disease, Health, and Survival among Native Americans. Ed. Clifford E. Trafzer and Diane Weiner. New York: AltaMira Press, 2001. 95-107. Print. Medicine Ways: Disease, Health, and Survival among Native Americans 95 107 Google Scholar

Roscoe, Will. Changing Ones: Third and Fourth Genders in Native North America. New York: Palgrave Macmillan, 2000. Print. Changing Ones: Third and Fourth Genders in Native North America Google Scholar

St. Pierre, Mark. Madonna Swan: A Lakota Woman's Story. Norman: U of Oklahoma P, 1991. Print. Madonna Swan: A Lakota Woman's Story Google Scholar

Standing Bear, Luther. My People the Sioux. Lincoln: U of Nebraska P, 1975. Print. My People the Sioux Google Scholar

Tatonetti, Lisa. "‘Dancing Back Strong the Nation’: Two-Spirit Images in the Work of Maurice Kenny." Maurice Kenny: Celebrations of a Mohawk Writer. Ed. Penelope M. Kelsey. Albany: State U of New York P, 2011. 119-32. Print. Maurice Kenny: Celebrations of a Mohawk Writer 119 32 Google Scholar

Tesh, Sylvia. Hidden Arguments: Political Ideology and Disease Prevention Policy. New Brunswick, NJ: Rutgers UP, 1988. Print. Hidden Arguments: Political Ideology and Disease Prevention Policy Google Scholar

Voss, Richard W., Victor Douville, Alex Little Soldier, and Albert White Hat, Sr. "Wo'Lakol Kiciyapi." Journal of Multicultural Social Work 7:1-2 (1999): 73-93. Print. Wo'Lakol Kiciyapi Journal of Multicultural Social Work 7 73 93 Google Scholar

Wald, Priscilla. Contagious: Cultures, Carriers, and the Outbreak Narrative. Durham: Duke UP, 2007. Print. Contagious: Cultures, Carriers, and the Outbreak Narrative Google Scholar

Walker, James R. "Tuberculosis among the Oglala Sioux Indians." The American Journal of the Medical Sciences 132.4 (1906): 600-605. Print. Tuberculosis among the Oglala Sioux Indians The American Journal of the Medical Sciences 132 600 605 Google Scholar

Williamson, Thomas S. "The Diseases of the Dakota Indians." Northwestern Medical and Surgical Journal 4 (1874): 418-19. Print. The Diseases of the Dakota Indians Northwestern Medical and Surgical Journal 4 418 19 Google Scholar

Zitkala-Ša. American Indian Stories. Lincoln: U of Nebraska P, 1979. Print. American Indian Stories Google Scholar

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Kelsey, Penelope